QUALITY OF LIFE (QOL) QUESTIONNAIRES FOR HEMOCHROMATOSIS v1.6

[Pierre Brissot January 8 2017]

[A.Godard Jan 13th& Jan 31st ]

 

QoL questionnaire is a combination of the following references QoL:

                -SF-36 modified to 34 questions to exclude pain addressed in the 2nd and 3rd part specifically (license probably)

                -modified WOMAC index for Hip and Knee osteoarthritis (license)

                -Modified Dreisler index for hand arthritis (free) less questions

                -Sexual life question

                -Needle Procedure burden

The modified indexes allow to have a global score taking into account the weight of each sub-questionnaire.

  1. A GENERAL HEALTH EVALUATION THROUGH A GENERIC QUESTIONNAIRE : SF36 (Ware JE J Clin Epidemiol 1998)

It has been widely used in numerous countries and has been translated according

This graph has been published by Inserm :

Data for general population for 11  SF-36 versions (from Gandek et al 1998)

PF : activité physique ; RP : limitations dues à l’état physique ; GH : santé perçue ; VT :

vitalité ; RE : limitations dues à l’état psychique ; MH : santé psychique ; HT : évolution de la santé perçue

Modified SF 36-Item Short Form Survey Instrument (SF-36) without Bodily Pain (21&22)

RAND 36-Item Health Survey 1.0 Questionnaire Items

SF-36 Resources

Choose one option for each questionnaire item.

1st Question

1.In general, would you say your health is :

 


2nd Question

2. Compared to one year ago, how would you rate your health in general now?

The following items are about activities you might do during a typical day.

Does your health now limit you in these activities? If so, how much?